Stakeholder Research and Engagement Internships (Summer)
Genetic Alliance is accepting applications for a remote internship this summer.
For Genetic Alliance, advocacy-led research means more than research conducted with participants at the table. It means that the people—groups of patients and activated communities—are truly leading the research effort, empowered with infrastructure and expertise. Interns interested in this work will help support Genetic Alliance’s tools, partnerships, and projects that build capacity in communities, enable new cross-sector partnerships, and place control in the hands of the people, empowering them with a greater sense of ownership over their health data.
In more than tree decades of supporting advocacy organizations and collaborating with clinical, policy, research, and other health institutions at the federal, state, and local levels, Genetic Alliance has cultivated a vast network. We believe the participation and leadership of diverse stakeholders is imperative for elevating voices; leveraging stories; identifying the most impactful research questions; informing successful participation and retention; generating insight for value assessment, quality product development, and effective project execution; and— ultimately—ensuring that knowledge makes its way back to people for better care.
Opportunities for projects include:
- Platform for Engaging Everyone Responsibly (PEER),
- Genetic Alliance BioBank,
- Genetic Alliance IRB,
- Disease InfoSearch.
These internships are valuable for those interested in public health, advocacy, health and/or clinical research, health information technology, medical school, nursing, allied health professions, health education, community-based health work, novel healthcare approaches, formative research, writing, resource development, and evaluation, community advocacy, engagement, and outreach.
We are seeking candidates with strong research and writing capabilities and an interest in advocacy-led research, excellent verbal and written communication skills, and/or an interest and in community engagement and outreach. Experience with community engagement, information technology, and/or database management experience preferred.